Global guidelines needed to address inequities in endometriosis care
Adolescents, gender-diverse people and those with lived experience are underrepresented in endometriosis guidelines worldwide, a University of Queensland study has found.
A University of Queensland study has revealed significant inequities in endometriosis care guidelines worldwide, with a focus on underrepresentation of marginalized groups. Researchers analyzed guidelines from 47 countries, finding that only 70% incorporated the perspectives of those with lived experience of endometriosis. Many guidelines, particularly those from developing countries, did not involve patients in their development, leading to substantial gaps in regions such as Africa and the Eastern Mediterranean.
The study, published in Communications Medicine, highlights the urgent need for standardized, globally informed guidelines to ensure consistent diagnosis, treatment, and self-care. Dr. Dereje Gete emphasized that general practitioners, often the initial point of contact for patients, should be better included in guideline development.
Despite global inconsistencies, Australia has made progress with its upcoming 2025 publication of the Australian Living Evidence Guideline: Endometriosis.
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