Dysautonomia conference centers biomarkers and post-exertional malaise
The 14th annual Dysautonomia International conference outside Houston included presentations on the role of autoimmunity in dysautonomia and a biobank initiative for POTS research. The post Dysautonomia conference centers biomarkers and post-exertional malaise first appeared on The Sick Times .
At the 14th annual Dysautonomia International conference in The Woodlands, Texas, over 400 clinicians, researchers, and individuals with dysautonomia gathered alongside another 1,000 participants online for a series of 50 sessions. The conference, organized by advocacy group Dysautonomia International, focused on various aspects of dysautonomia, including its potential links to autoimmunity, mast cell dysfunction, and postural orthostatic tachycardia syndrome (POTS) as well as its comorbidity with myalgic encephalomyelitis (ME).
A significant addition to the conference was the launch of the POTS BRAIN biobank initiative, aimed at facilitating research in POTS. The first study will investigate biomarkers for iron storage and inflammation. The conference also addressed the challenges of post-exertional malaise (PEM) and provided guidance on recognizing and mitigating its effects.
ME and PEM were highlighted as critical topics throughout the conference. However, some POTS experts continued to promote exercise as the best treatment, despite acknowledging the risks of graded exercise therapy for individuals with ME. The conference allowed masking but did not enforce it, and provided Corsi–Rosenthal boxes in all common areas. Although press passes were offered to The Sick Times, the organizers declined to issue one for this conference, citing no specific reason.
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