Ireland 'unprepared' to address Down syndrome, dementia

Irish society is unprepared to address the needs of the growing population affected by both Down syndrome and dementia, according to Down Syndrome Ireland. A charity advocate, Gina Grant, stated that dementia poses a high risk for those with Down syndrome, with 85% of individuals over 65 developing the condition. By age 50, one-third of people with Down syndrome show signs of dementia.

Ireland has a high prevalence of Down syndrome, with an estimated 7,000 to 9,000 adults affected. The country's support system for dementia patients under 65 is lacking, says Grant. David Azzie, a 60-year-old man with Down syndrome, lives alone and has shown cognitive decline since his mother's death in May. He receives limited home care from the HSE but has not qualified for additional support due to his age and intellectual disability.

Grant emphasizes the need for forward planning and increased support from local councils, the HSE, and the government. Dr. Antoinette O'Connor, a neurologist, notes that dementia is a common outcome for individuals with Down syndrome, with Alzheimer's disease being the most likely cause. Better diagnostics and treatments are needed, as the challenge lies in distinguishing cognitive decline from the individual's lower baseline intellectual function.