South Africa: Caring for a Child With Cerebral Palsy - the Support That Helped a Gauteng Mother Cope

Llona Makhubedu, a mother from Gauteng, shares her experience of caring for her son Paballo, who was born with cerebral palsy and is non-verbal. Eighteen years ago, Paballo had to be placed on life support after his birth at Refentse Clinic in Stinkwater. Despite doctors' advice to withdraw life support, Llona refused, stating, "I can't put an end to my first seed."

Paballo is now a happy child at the Boikanyo Disability Centre, enjoying outings and communicating through sign language. Llona acknowledges the challenging journey of caring for a child with complex needs, both physically and psychologically. She received counseling during Paballo's early years, which helped her manage the emotional stress.

Llona's family, including her grandmothers, sisters, and a nanny, provided significant support. The school Paballo attended also offered assistance and aid in accessing healthcare. Llona does not feel she was denied necessary support, but she emphasizes the need for practical improvements, such as providing a supporting mattress and sensory learning materials for home use.

Thapelo Tshabalala, founder of Tshwane Disability Empowerment Projects, stresses that support for people with disabilities should extend beyond medical care and involve the entire community.