My mom was diagnosed with Alzheimer's at 58. I helped care for her for 20 years and learned 3 important lessons.

Karen Finocchio's mother, Louise, was diagnosed with Alzheimer's disease at the age of 58. Louise, known as Lulu, was a caring, quick-witted, accomplished, and kind woman who had a significant impact on her family. Louise passed away in September 2015, 20 years after her diagnosis. Finocchio and her father served as her primary caregivers for two decades, experiencing both beautiful moments and challenging times as they cared for her.

The author reflects on three important lessons they learned from this experience. First, they wished they had recognized the early signs of Alzheimer's in Louise sooner. Louise showed symptoms at the age of 54, but it took around two years for Finocchio and her father to understand what was happening. Despite her exceptional career as an interior designer, Louise lost her business sense, which led to missed orders and bill payments.

The author emphasizes that earlier detection would have provided more options for treatment and planning.

Second, Finocchio emphasizes the importance of accepting the limitations of a person with Alzheimer's. Initially, the author struggled with correcting Louise when she forgot things, which often resulted in defensive reactions from Louise. The article highlights the significance of learning to communicate in a way that minimizes frustration and frustration for both the caregiver and the person with Alzheimer's.

The author also mentions that education through research plays a crucial role in understanding and managing the disease.

Finally, Finocchio shares her gratitude for the advancements in Alzheimer's treatment that allowed her mother to lead a more fulfilling life. Louise participated in clinical trials, including new pharmacological treatments, which contributed to the progress of Alzheimer's research. In 2004, Louise was under the care of Dr. Brent Forester, who pioneered a study using ECT (electroconvulsive therapy) to address aggressive behavior.

This intervention helped Louise regain her sparkle and smile, bringing her joy even as her Alzheimer's progressed. The author recalls a specific memory of Louise's happiness on her wedding day in 2006, which highlights the impact of personal care and attention on a loved one with Alzheimer's disease.