My 5-Year-Old Son Felt Unwell on Vacation, Days Later He Was Gone
After his 5-year-old son died from a rare disease just days after falling ill, one father is determined to raise awareness.
Justin, a five-year-old boy, experienced stomach pain on a family vacation in Portland, Oregon. His condition worsened over the following days, with symptoms including lethargy, vomiting, hallucinations, and eventually organ failure. Justin was placed on life support and dialysis, but doctors struggled to find a diagnosis for his condition.
Eventually, he was diagnosed with idiopathic systemic capillary leak syndrome, a rare disorder affecting fewer than 500 people worldwide. Justin's condition continued to deteriorate, and medical professionals warned that he would likely not survive. Despite his deteriorating health, Justin fought for two more days before passing away.
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