Iraqi father’s heartfelt plea to save five-year-old son with rare muscle disease

An Iraqi father, Saban Hassan, 42, is desperately seeking help to secure gene therapy for his five-year-old son, Ali, who has been diagnosed with Duchenne muscular dystrophy (DMD), a rare and aggressive genetic disorder. The family, residing in Iraq, has been told that the treatment, costing an estimated Dh10.6 million ($2.9 million), is far beyond their financial means.

The father, who recently launched a fundraising campaign in his home country, has only managed to raise 2% of the required amount. Ali's symptoms first appeared when his parents noticed issues with communication and behavior, including hyperactivity. A genetic test conducted at Al Jalila Children’s Hospital in Dubai confirmed the diagnosis in August.

The family is devastated by the news and the realization that they cannot afford the treatment. They have even considered selling their home, but it would only cover 10% of the required cost. Despite his efforts to appeal to charities, officials, and prominent individuals, Mr. Hassan has received rejections, with some stating the sum is too large.

He has now turned to the UAE, where the treatment is available, and to the international community for assistance.