The chair a father built to protect his son
His son’s worsening condition is testing the limits of a father’s ingenuity as the family struggles to fund urgent treatment.
A father has ingeniously modified a simple IKEA chair to protect his 15-year-old son, Kong Wei Yang, from self-injury due to his rare genetic disorder, Lesch-Nyhan syndrome. The disorder causes involuntary movements and compulsive self-biting, which can be so intense that the chair's makeshift restraints need frequent repairs. Despite medication, Wei Yang's self-injury has become more frequent and forceful, compelling his parents to stay vigilant throughout the day and night.
His parents, Kong Hean Fui and Wong Yin Teng, are struggling to afford the deep brain stimulation procedure recommended by doctors to control his symptoms, with the family currently short of RM240,000 to RM260,000. The adapted chair, however, serves as a tangible symbol of their father's dedication to safeguarding his son.
Written by urgent.news from Free Malaysia Today's reporting — not their text. Machine-written — may contain errors; check the original before relying on it.
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- The chair a father built to protect his son freemalaysiatoday.com
