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Bapa ubah suai kerusi demi lindungi anak

Keadaan anaknya yang semakin buruk menguji kemampuan seorang bapa, ketika keluarga itu berusaha mengumpul dana bagi rawatan segera.

Bapa ubah suai kerusi demi lindungi anak

Kong Hean Fui, an 15-year-old boy, uses a modified IKEA chair with straps to prevent himself from injuring himself due to uncontrollable movements. His parents, Kong Wei Yang and Wong Yin Teng, must constantly monitor him as his movements can suddenly change. Wei Yang suffers from Lesch-Nyhan syndrome, a rare genetic disorder causing involuntary movements, muscle control issues, and a compulsive tendency to injure himself.

Despite being prescribed a therapy, the cost is beyond their means. The family received a Facebook fundraising appeal in July, which collected around RM40,000, but the need increased to RM280,000 to RM300,000 for a Deep Brain Stimulation (DBS) procedure. The family currently requires between RM240,000 and RM260,000, including expenses for medication and a special wheelchair. So far, they have raised RM40,000, leaving a significant financial gap.

Written by urgent.news from Free Malaysia Today's reporting — not their text. Machine-written — may contain errors; check the original before relying on it.

Also reported by 1 other outlet

Read the original at freemalaysiatoday.com →

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