Dubai mother takes on 150km camel challenge for six-year-old son with Angelman syndrome
Dubai: For Rhian Adams, every step her six-year-old son Samson takes is a milestone worth celebrating. Samson, who is nearly seven, has been diagnosed with Angelman syndrome when he was just 10 months old. The rare genetic condition affects a gene on chromosome 15 and can cause significant challenges with speech, movement, learning, and communication. Now, Adams, a British expatriate based in…
Rhian Adams, a British expatriate living in Dubai, is preparing to embark on a 150km camel trek across the desert to raise awareness for her six-year-old son, Samson, who has Angelman syndrome. The condition, caused by a genetic mutation on chromosome 15, can lead to difficulties in speech, movement, learning, and communication.
Samson, nearly seven years old, is nonverbal but communicates through various means such as photographs, touch buttons, facial expressions, and body language. He loves music, swinging, and rough play, and his mother, Rhian, is a single parent raising him alongside his older sister. The 15-day challenge, titled "Carried through the sand — 15 days for chromosome 15," will see Rhian ride approximately 10km each day from October 12 to 26, aiming to educate people about Angelman syndrome and its impact on her family.
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