Deaf people excluded from gene-editing debate | Letter
There is no majority support for use of gene editing on non-life-threatening conditions, writes Tom Lichy of the British Deaf Association Your editorial ( The Guardian view on gene-edited humans: darker uses must be acknowledged alongside medical ones, 5 July ) offers welcome support to those expressing concern about the lack of public dialogue on gene-edited humans. These concerns are…
An editorial in The Guardian emphasizes the need for an inclusive national conversation about gene editing, particularly in relation to deaf individuals. Tom Lichy, Head of policy and research at the British Deaf Association, highlights that there is no majority support for using gene editing on non-life-threatening conditions, such as deafness.
The recent approval of a gene therapy for deafness by the US Food and Drug Administration has raised concerns about the lack of accessibility for deaf signers in discussions surrounding such therapies. Lichy urges policymakers to incorporate the perspectives of deaf individuals when making decisions related to gene editing, stressing the importance of the principle "nothing about us without us."
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