{
  "id": 7703588,
  "title": "The girl with a will to live: the love, hope and pain of raising Elsie – my one in 163 million daughter",
  "url": "https://urgent.news/2026/09/16/the-girl-with-a-will-to-live-the-love-hope-and-pain-of-raising-elsie-7703588",
  "topic": "science",
  "section": "Science",
  "published": "2026-09-16T04:00:12.000Z",
  "source": {
    "name": "Guardian Science",
    "slug": "guardian-science",
    "url": "https://www.theguardian.com/lifeandstyle/2026/sep/16/love-hope-pain-raising-elsie-rare-genetic-disorder"
  },
  "original_language": "en",
  "account": null,
  "summary": "She was born with an ultra-rare genetic disorder. After my decades working in film PR, I now face the biggest campaign of all: the fight for her life My daughter Elsie has beautiful curls – blond like a little Botticelli cherub’s, hair that someone dark like me could only ever dream of. She laughs a lot, has a cheeky sense of humour and soaks in all the sounds around her – rustling leaves, the…",
  "key_points": [],
  "editors_take": null,
  "illustration": null,
  "coverage": {
    "outlets": 2,
    "also_reported_by": [
      {
        "outlet": "Guardian Health",
        "title": "The girl with a will to live: the love, hope and pain of raising Elsie – my one in 163 million daughter",
        "url": "https://urgent.news/2026/09/16/the-girl-with-a-will-to-live-the-love-hope-and-pain-of-raising-elsie",
        "published": "2026-09-16T04:00:12.000Z"
      }
    ]
  },
  "ai_generated": true,
  "disclaimer": "Summaries, key points and the editor’s take are written by software from other outlets’ reporting and may contain errors — always check the linked original."
}