{
  "id": 503284,
  "title": "B.C. family finds hope in Montreal researchers to fight son’s rare disease",
  "url": "https://urgent.news/2026/08/10/b-c-family-finds-hope-in-montreal-researchers-to-fight-sons-rare-503284",
  "topic": "health",
  "section": "Health & Medicine",
  "published": "2026-08-10T20:07:33.000Z",
  "source": {
    "name": "Global News",
    "slug": "global-news-globalnews",
    "url": "https://globalnews.ca/news/12015854/bc-family-hope-montreal-researchers-son-rare-disease/"
  },
  "original_language": "en",
  "account": "A B.C. family is gaining hope through researchers in Montreal who are working to find a treatment for their three-year-old son, Gurmoh Gill, who suffers from hereditary spastic paraplegia, or HSP, a rare genetic condition with no known cure. HSP causes progressive stiffness and weakness in the legs, and potentially in the arms, speech, and mental capacity. Gurmoh's parents, Navpreet and Stalin Gill, were devastated upon receiving the diagnosis, as they were told their child would lose all the milestones they had once celebrated. In their search for help, they reached out to Montreal's Neuro and received encouragement from the researchers. Dr. Ziv Gan-Or, director of clinical research at the Neuro, explained that the goal is to find a treatment that could slow the progression of the disease, rather than reversing the damage already done. Driven by their newfound hope, the Gills have embarked on the \"Journey of Hope\" to raise awareness and fundraise for families facing similar challenges. Their mission includes traveling across Canada, collecting letters from those living with rare diseases, and delivering them to the prime minister's office, advocating for equal access to medical resources for all Canadians.",
  "summary": "A B.C., family is travelling across Canada in search of hope from their three-year-old son, as Montreal researchers work on a potential treatment for his rare genetic disease.",
  "key_points": [],
  "editors_take": null,
  "illustration": null,
  "coverage": {
    "outlets": 2,
    "also_reported_by": [
      {
        "outlet": "Global News",
        "title": "B.C. family finds hope in Montreal researchers to fight son’s rare disease",
        "url": "https://urgent.news/2026/08/10/b-c-family-finds-hope-in-montreal-researchers-to-fight-sons-rare",
        "published": "2026-08-10T20:07:33.000Z"
      }
    ]
  },
  "ai_generated": true,
  "disclaimer": "Summaries, key points and the editor’s take are written by software from other outlets’ reporting and may contain errors — always check the linked original."
}