{
  "id": 3227132,
  "title": "STAT+: Comments on OMB research rule mysteriously removed from federal website",
  "url": "https://urgent.news/2026/08/25/stat-comments-on-omb-research-rule-mysteriously-removed-from-federal",
  "topic": "science",
  "section": "Science",
  "published": "2026-08-25T08:30:00.000Z",
  "source": {
    "name": "STAT News",
    "slug": "stat-news",
    "url": "https://www.statnews.com/2026/08/25/russell-vought-omb-funding-comments-daughter-benefited-nih-research/"
  },
  "original_language": "en",
  "account": "Magdeleine Bradford-Butcher has been at the forefront of medical advancements. When she learned her child had cystic fibrosis, her doctor prescribed a new treatment called Trikafta. This medication, along with others, has greatly improved the life expectancy of children with CF. Bradford-Butcher was surprised when a doctor told her after her daughter's birth that with all the new developments, her daughter had a good chance of outliving her. This optimistic news was a beacon of hope amidst a frightening diagnosis. Bradford-Butcher was dismayed to learn about a potential regulation that would allow more political influence in federal science funding. Encouraged by the Cystic Fibrosis Foundation and science influencer Jessica Knurick, she submitted a public comment about her personal experience with research funding. She worried that this proposed overhaul of federal contract laws could impact research on other children's diseases as well as a study involving her daughter's participation in a Trikafta in utero trial. The comment she made was posted on the federal government's regulations.gov website, but it was mysteriously removed by the White House Office of Management and Budget, leaving everyone puzzled.",
  "summary": "Some comments on a proposed OMB research rule have been mysteriously removed from a public-facing government webpage.",
  "key_points": [],
  "editors_take": null,
  "illustration": null,
  "coverage": {
    "outlets": 1,
    "also_reported_by": []
  },
  "ai_generated": true,
  "disclaimer": "Summaries, key points and the editor’s take are written by software from other outlets’ reporting and may contain errors — always check the linked original."
}