{
  "id": 19857838,
  "title": "Brampton family seeks community support to help get gene therapy for 2-year-old child with rare condition",
  "url": "https://urgent.news/2026/11/13/brampton-family-seeks-community-support-to-help-get-gene-therapy-for",
  "topic": "health",
  "section": "Health & Medicine",
  "published": "2026-11-13T19:50:36.000Z",
  "source": {
    "name": "CityNews",
    "slug": "citynews",
    "url": "https://toronto.citynews.ca/2026/11/13/brampton-child-rare-disorder-aadc-deficiency-treatment/"
  },
  "original_language": "en",
  "account": "A Brampton family is in desperate need of financial assistance to obtain an experimental gene therapy for their two-year-old child, Zoravar Singh, who suffers from a rare genetic disorder called AADC Deficiency. The province has denied their request for out-of-country funding. AADC Deficiency impacts the brain's production of a crucial enzyme responsible for synthesizing neurotransmitters, leading to motor control, communication, and behavioral issues. Zoravar requires specialized treatment in Boston, Massachusetts, which has recently become available through a groundbreaking gene therapy called Kebilidi. The FDA approved this therapy in November 2024. Despite multiple denials from Health Canada, the family continues their fundraising efforts through a GoFundMe campaign, aiming to gather $5.5 million for the treatment.",
  "summary": "A Brampton family is racing to raise millions of dollars for an American medical treatment that could help save their two-year-old child living with a rare genetic disorder after the province denied their out-of-country funding. Zoravar Singh has been diagnosed with a rare condition called AADC Deficiency. “His day starts with the medication and ends […]",
  "key_points": [],
  "editors_take": null,
  "illustration": null,
  "coverage": {
    "outlets": 1,
    "also_reported_by": []
  },
  "ai_generated": true,
  "disclaimer": "Summaries, key points and the editor’s take are written by software from other outlets’ reporting and may contain errors — always check the linked original."
}