{
  "id": 17260705,
  "title": "A Rare Disease and Analog Photography Merge in a Portrait of Self-Discovery",
  "url": "https://urgent.news/2026/10/30/a-rare-disease-and-analog-photography-merge-in-a-portrait-of-self",
  "topic": "culture",
  "section": "Culture",
  "published": "2026-10-30T16:37:54.000Z",
  "source": {
    "name": "Colossal",
    "slug": "colossal",
    "url": "https://www.thisiscolossal.com/2026/10/everything-twice-cy-kuckenbaker-film/"
  },
  "original_language": "en",
  "account": "\"Everything Twice\" is a poignant exploration of disability and self-discovery, as depicted in a short film by photographer Cy Kuckenbaker. Since his youth, Kuckenbaker has noticed a drooping eye, a symptom he initially attributed to a snowboarding accident. However, it wasn't until years later that medical professionals diagnosed him with a rare condition.\n\nThis revelation is the central narrative thread of Kuckenbaker's work. It forms the backdrop against which he undertakes a journey of self-discovery, one that is both personal and universal. To cope with creative burnout, Kuckenbaker turned to the slow, analog process of photography, crafting his own cameras from everyday materials like cardboard boxes and drugstore magnifying glasses.\n\nThe film interweaves the physical act of analog photography with Kuckenbaker's journey of understanding his rare disease. Both the labor-intensive process of film photography and the uncovering of his unusual ailment serve as vehicles for contemplation on themes of disconnection and loss. In doing so, \"Everything Twice\" becomes a powerful portrait of self-discovery, capturing the beauty and complexity of the human experience in a world that can often feel isolating.",
  "summary": "\"Everything Twice\" is a quiet meditation on disability and the ways we orient ourselves in the world Do stories and artists like this matter to you? Become a Colossal Member today and support independent arts publishing for as little as $7 per month. The article A Rare Disease and Analog Photography Merge in a Portrait of Self-Discovery appeared first on Colossal .",
  "key_points": [],
  "editors_take": null,
  "illustration": null,
  "coverage": {
    "outlets": 1,
    "also_reported_by": []
  },
  "ai_generated": true,
  "disclaimer": "Summaries, key points and the editor’s take are written by software from other outlets’ reporting and may contain errors — always check the linked original."
}